So if you haven’t noticed, it’s been a while. You know a lot of times if someone is absent for a while it’s simply due to the fact that they’re really busy and having a blast living life. Other times it might be something more challenging. Truth is, we don’t know unless they tell us.
For the last few months Princess little tree and I have been unfortunately going through something more on the challenging side, while strangely also being really busy and (attempting to at least) having a blast enjoying living life.
It honestly didn’t even occur to me until the last day or two to even share this with anyone. Not kidding. Even my closest friends who I communicate with on a daily basis via text will find this news entirely new.
I’ve thought about this strange fact a little today. Part of it is just black and white practical: I’ve been in so much pain for the last few months that I haven’t thought about or done anything except just trying to get thru the next minute. (Pain is an incredible phenomenon. One of the reasons I finally decided to let this loose is because I’ve discovered some fascinating things about consciousness from being in excruciating pain, and over the next few weeks and months will most likely make note of them as they occur to me. So step one would be to let everyone know what’s going on so we have some context.)
I can hear you now… “Ambassador get to the freaking point man, Jesus!” Yeah I know. That’s the thing about not telling anyone something for a long time… You’re way ahead of them in your thoughts about it. Meantime, they don’t even know what you’re talking about.
Long story short, we’re facing a challenge with my spine. Yep. I know. Sounds crazy. Waited too long to tell anyone. It’s been a few months now. We’re already through the chiro, X-rays, cat-scans, orthopedic doctors, MRIs, radiologists, physical therapy, second and third opinions etc.
We’re also already well into the denial shock trauma anger sadness and fear phases as a family. I wish I could tell you “it’s this one thing and this is the game-plan”. Truth is, it’s a multiple of different issues. We’re as shocked as anyone else would be. The doctors have prioritized which are the most pressing in importance and we’ll be dealing with them in that order. If you’re into that kind of thing or interested, we can break down the details in a separate message.
It’s three pages of insanely technical medical-speak that features the word “severe” a lot. We are still in a state of mild shock about it, just typing it here, contemplating it, and we’ve been dealing with this for a few months now. Still doesn’t sound real to me, even though I’m experiencing it on a daily minute to minute basis. Just seems like we’re talking about someone else’s life. (I really believe now that the human mind does tend to warden off certain things when they seem “too big or horrible” to us. It puts up a metaphorical hand and says “Nah, not me.” It’s fascinating.)
Unfortunately pain is a major factor in this particular issue. So it’s hard to stay in denial. When you picture that “pain-chart” at the doctors office, the one with the faces on it from level 0 pain to level 10, I always figured level 10 pain would be akin to getting shot or stabbed or tortured or having a limb cut off… level 10 is the highest number on the chart.
Again, for context, so as a human community we can effectively communicate with one another. Charts are a great thing. So you have to go to the worst possible things you can imagine to get your head around level 10 pain. For about two months now I’ve been in level 7-9 pain. Excruciating is the most appropriate word I have found for it.
Yes, to answer your next logical question, i am on a lot of medications for it. 4-7 different ones, depending on the hour, all day long. My mind is a dark murky slow-churning swamp most of the time. But better than being in excruciating pain.
Re the denial, part of the reason I’m in this situation is because I just “ignored it” for so long. We’ve been told by the doctors that men have this unfortunate supernatural predilection for doing this compared to women, thinking if they ignore it it’ll go away or that they can “tough it out” or “power through it”. Because they’re “a man”. They’re strong. Tough. That’s what I did. I know a lot of guys that tend to do that. With a lot of different things.
I actually worked out more over the last year thinking “I just need to get stronger and I’ll beat this pain whatever it is”. It’s funny looking back now. But in a really sad way, because I ended up doing a lot more damage.
Yes my wife is really really mad. But her fear presently outweighs her anger thank God. Or not. Depends on how you look at it. The hardest part of this I’ll tell you flat out is #1, dealing with the pain. Because it’s a constant. It’s chronic. Your mind plays tricks on you. It fantasizes about “ending things so you can just get out of pain”. You have to be hyper-vigilant to defeat those thoughts. That’s the second hardest thing: trying to keep your sanity, remember who you are and remind yourself that you freaking love being alive.
The third hardest thing, for me, hands down, is watching what it’s doing to my wife and not being able to help her as i normally do with everything. Seeing her sadness, watching her break down and cry out of fear or feeling sorry for us. It’s heart breaking. It crushes my soul. For obvious reasons.
Bottomline, and here’s where it gets juicy from a widened-back philosophical human perspective, we’re at that point in the journey where we’re done examining researching exploring and talking to different experts in their field etc. The bottomline according to the doctors is I “need at least two separate surgeries or there’s a good chance I will be non-ambulatory in less than a year.” Yes we also had to ask what does “non-ambulatory” mean? We had no idea. Who does?
So yeah. We are as can be expected still in complete shock. But we’re also positive and ploughing ahead. It seems like it happened overnight. But they say it’s been progressing for a good ten years and that I “evidently just have a high tolerance for pain”.
This Wednesday I’m going in for spinal injections to reduce the inflammation, which should help reduce the pain and help us get to the next phase where we can schedule the first surgery. They will either do one long surgery to address three different issues or two separate smaller ones.
I know a lot of us in the world of art entertainment and intellect are not religious by nature, which i think is totally logical and understandable; and yet ironically most are “spiritual” in one sense or another. Especially if you’re friends with me or PLT.
As I told a mentor of mine, who happens to be a pastor, a few weeks back, I “would never ask anyone to pray for me for healing or to miraculously take this away, because there’s just way too much suffering in the world. Why on earth would I ever presume to request that I get a miracle when other people are suffering so much worse than I am?” Thats kind of where I land when it comes to this. My wife and my mom are not happy that I feel that way. But man I just don’t feel like I need it compared to other folks who have it much worse.
What I will ask and am asking for is that whatever cool magical beautiful spiritual thing you do in your day to day practice, put in a good word for me that I am able to deal with and integrate the mental and emotional challenges of this kind of thing. I’m having a tough time with anger, becoming easily annoyed and impatient. If you know me personally, you know that’s not like me. I’m a little perplexed by it. If anything, the Ambassador is a happy go lucky guy. But not lately.
I will say though that this experience has radically transformed my relationship with music, playing the guitar — honestly it’s more like bonding and becoming one with the guitar, and with songwriting and composition. I cannot adequately express with words how much joy playing the guitar and exploring different guitars has provided me with in the last few months since we got this news. It’s been a life saver.
More than anything, I’d like to ask you to send positive vibes to and for my wife. You know princess little tree is the sweetest person in the world. She’s like an angel on earth in human form. This has been hard for her. More than hard. And she’s had to pick up a lot of slack for both of us. Besides dealing with all the emotional challenges of this kind of event, which she doesn’t have much time to do because of the practical logistics of doing everything we need to to get through the process to fix this.
I honestly cannot imagine it — I freak OUT if she even gets a migraine! I go into a freaking panic inside. But she’s been dealing with this now for a few months. And so far she’s really hanging in there. Trying to integrate it emotionally in the mornings with friends and family before I wake up so she has a brave face during the day.
But it’s going to get more real starting this week. So I’d like to ask us all to lift her up and send her positive vibes and strength and courage, remembering the Divine’s infinite love and power. Keep her in your thoughts and prayers if that’s your thing.
As for me, to be perfectly honest I am not afraid. I am not worried. I’m strangely calm and confident about the path forward. The pain is unbearable and I’d like it to stop. We’re working on that. We have a good team. And a good plan. I get that life is an awesome adventure of ups AND downs. And that’s what makes it super fun and exciting. Way better than not being alive. Obviously I’m very hopeful and determined for the best possible outcome. We will keep you posted.